Archive: Advocacy

Rare Disease Day 2017: Reaction to EDS Video by AJ+

February 28th, 2017, by

February 28 is rare disease day. Well okay, technically February 29 is rare disease day, but ...

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Christianity Demands the Acceptance of ALL Refugees, Not Just Christians

February 27th, 2017, by

I just heard a commercial on (of course) Conservative Radio that made me very sad. This ...

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Support Groups Are Not Competitions

August 23rd, 2016, by

I’m running an EDS and/or POTS support group on Sunday that meets every few months, and ...

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In Solidarity with the Dallas Police

July 8th, 2016, by

I would be incredibly remiss after my post yesterday about the brutal and tragic murder of ...

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To Not Close My Eyes

July 7th, 2016, by

Today I forced myself to watch the most terrible thing I have ever seen: the brutal ...

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