Archive: Healthcare

Rare Disease Day 2017: Reaction to EDS Video by AJ+

February 28th, 2017, by

February 28 is rare disease day. Well okay, technically February 29 is rare disease day, but ...

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Support Groups Are Not Competitions

August 23rd, 2016, by

I’m running an EDS and/or POTS support group on Sunday that meets every few months, and ...

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Rediscovery (A New Poem)

July 16th, 2016, by

I haven’t spoken about this publicly yet, but I have not been able to use my ...

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Rare Disease Day 2016

February 29th, 2016, by

Today is Rare Disease Day (February 29! Get it?). By the very term “rare diseases,” it’s ...

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