An Open Letter to Senator Pat Toomey: Please, Stop the AHCA, and Save Our Lives
Dear Senator Toomey, I am writing to you as a constituent with Ehlers-Danlos Syndrome (EDS), a ...
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Rare Disease Day 2017: Reaction to EDS Video by AJ+
February 28th, 2017, by Michael Bihovsky
February 28 is rare disease day. Well okay, technically February 29 is rare disease day, but ...
Read MoreSupport Groups Are Not Competitions
August 23rd, 2016, by Michael Bihovsky
I’m running an EDS and/or POTS support group on Sunday that meets every few months, and ...
Read MoreRediscovery (A New Poem)
July 16th, 2016, by Michael Bihovsky
I haven’t spoken about this publicly yet, but I have not been able to use my ...
Read MoreRare Disease Day 2016
February 29th, 2016, by Michael Bihovsky
Today is Rare Disease Day (February 29! Get it?). By the very term “rare diseases,” it’s ...
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